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This website’s purpose is to inform the public and sufferers about Adhesive Arachnoiditis.

HAVE YOU HAD ANY OF THE ABOVE!!! Have you had chronic pain your doctor cannot explain? Have you had a Myelogram between the years of 1945 and 1988, then please read on as you may be able to recognise your symptoms. So many Australians are living in chronic pain due to having being injected with a dye called (Pantopaque/Myodil).

It was the only way for the doctors to see the spine clearly by using an ex-ray called a Myelogram where they injected the dye into the spine. The condition called Adhesive Arachnoiditis or Arachnoiditis can take 10 to 20 years to develop and is mostly medically acquired. The effect of the dye can cause unbearable burning back pain, shooting pains through back and legs, restless legs syndrome, spasms, burning feet, joint pain with numbness and tingling sensations. If you have any of these symptoms and you have had a Myelogram then there is good chance that you are suffering from Arachnoiditis from which there is no cure and you have to learn pain management to be able to cope with the chronic pain.

Myodil is a contrast agent used in a procedure called Myleography. This involves visualisation of the spinal cord by the injection of contrast material into the subarachnoid space, ie. into the spinal fluid through a needle injected into the back. Myleography was first used in 1919, when air was injected to produce an air myelogram. In 1922 an oil based substance called Lipiodol was introduced. Lipiodol was extremely toxic. In 1923 Thorotrast was used but was radioactive and carried a high risk. Myodil was investigated as an alternative to Lipiodol. The new medium was tested clinically on November 1940. It came into usage in 1942 and went on to become the agent of choice between 1944 and 1972 in the UK.

Myodil remains in the nervous system, either persisting as a thin film or encapsulated scar tissue, being hyperbaric gravity tends to draw Myodil remaining in the system after the Myelogram downwards from other parts of the spine to collect in the lumbosacral area at the bottom of the spinal cord. It causes a chronic inflammatory reaction and the scarring it can produce can lead to secondary effects throughout the body. It has been shown that if Myodil is left in a styrofoam cup overnight it will dissolve the cup. Also a patient having a water-soluble contrast agent which superseded Myodil after it’s withdrawal in 1987 are not without risks.